When my mother and I decided to share a house in 2005, it was because I had just adopted my daughter and I wanted a house with a yard. Mother had lived alone for 9 years after my father died, and she wanted to get out from under the burden of taking care of a large house with a pool, and of course be near to her only grandchild.
We looked for several months before finding this house, and felt fortunate to get this one, because it's in an established neighborhood and good schools are within walking distance. Also, Mom has a big room and private bath on the first floor, in her own area of the house. When the kids were running around and being loud she could shut her door and have her peace, which was crucial to her happily sharing the house with us.
Mom was instrumental in co-parenting my daughter and then my son, for years. My daughter was 13 when I brought her home in 2005, and Michael was 10 when he was adopted in 2007. She kept them when I was working, took them shopping and out to eat, helped with homework, helped with learning English, and more. I'm sure she never dreamed that in her 71st year she would be taking on such a challenge but I think it invigorated her. I know the children benefited greatly from having Granny around. They both adore her.
As time has passed and the children have grown up and left home, Mother has gotten increasingly less mobile, due mainly to arthritis and some asthma issues. My role has changed to more of a caretaking one, and that's okay. I can work from home and take care of her.
Mom is 83 now.
Issues arise all the time.
She was recently prescribed a new medication, Eliquis, for atrial fibrillation. Getting the pills out of the packaging is a nightmare. The doctor gave us several packages of it, for her to try, and the company that makes it apparently has no clue that older folks might have trouble digging all those little pills out of the packaging. Heck, I'm 54 and I have trouble getting those blasted pills out! It's really tough to get MOST of her pills out of the packaging, which is just ridiculous.
A few years ago she had big issues with edema in her legs, so every morning I put what used to be called "support hose" on her lower legs, so I put CircAid compression wrappings on her lower legs, then help her get dressed. I also fix her meals and she mostly eats in her room, but she comes out sometimes. She has fallen a couple of times over the years and mobility is an issue.
When Mom fell in 2005, shortly after we moved here, she broke both shoulders. After a hospital stay we had to put her in a rehab place for several weeks. I remember seeing old people in other rooms just sitting and staring at the TV like zombies, no family member or caregiver around, and I vowed that my mother would not be like that, if I could help it. She recuperated very well from the fall and went on to be very helpful to me for years afterwards, with the kids.
However, now she is the one needing care.
Because I have been a caregiver now for several years, I wanted to offer some practical advise for people in similar situations to mine. Of course, every situation is different, depending on the senior's physical condition and a lot of other factors, but these are some tips that you might find useful.
Now, before I start let me say that Mother, although she has mobility issues, is still mentally very sharp.
- Don't fear technology. Mother has bad arthritis in her hands, so although she has been an avid reader for many years -- 2-4 books a week -- it was getting increasingly difficult for her to manage books. So we got her a Kindle a few years ago. Just about 6 months ago a friend of mine sold me his newer, updated Kindle. It's a godsend. It weighs very little, and Mom doesn't have to hold heavy books. Now, it has taken time for her to get used to it and she often hits the screen and throw the typeface out of whack, but I fix it for her. Mother also loves to be on her computer, and she Facebooks and emails and Googles a LOT. I haven't gotten her comfortable with YouTube yet, but we'll get there.
- Food will lose it's taste. This one surprised both Mother and me. She says food just has very little taste any more. We have experimented a bit, and what she loves are tomatoes and spicy tomato juice. She can taste those things. It's just a part of aging, albeit an annoying one for her. I get Mexican food once a week for her. Help your senior figure out what foods still have taste, and fix those for him/her.
- Get a healthcare directive asap. Some years ago these were called "living wills." I was working part time for an attorney who does wills a few years ago, and she drafted an Advanced Directive for Healthcare [or words to that effect; I can't recall exactly what it was called] for Mom, and a new Will. Mother's advance directive is very clear on what she wants done in case she becomes incapacitated. If there are end of life decisions, her advanced directive expresses her wishes clearly. THIS IS CRITICAL. No matter what state you are in, get one of these for your senior. Get it done by a good attorney, too, don't use one of those do-it-yourself kits - that may not hold up in court. Really, every adult needs one. You never know when you could be injured and put on life support. If a physician does NOT have such a directive, he/she is obligated to follow a different protocol, which may mean keeping the patient alive artificially for YEARS. Make sure all doctors have a copy of the Advanced Directive. We also keep a copy in Mom's purse, in case she has to go to the hospital suddenly.
- Get familiar with products to help older folks. Mom has several "grabbers" near her at all times, because bending down to pick up something from the floor is very difficult. You can check a website and order one of these, or just look at the drugstore. Walgreens and CVS seems to offer a lot of good products. Mom also uses a stool in the bathroom, an extended arm hairbrush, and rubber grips on the doorknobs. We also keep LED touch lights near her for in case the electricity goes out. Flashlights are too heavy for her. We are always looking for products that make life less difficult for her.
- Get a life alert device. When Mother fell in 2005 she was alone in the house and she was on the floor several hours before I realized she hadn't picked up Alesia from school, and I left work, picked up Alesia and got home. The dog was barking frantically but it was a terrifying and painful experience for Mother, with both shoulders broken. As a result of that ordeal, after she came home from rehab we got her a bracelet she could wear which has an emergency button to push if she falls and can't get up on her own. Last year, she fell on the way to the bathroom in the middle of the night and we realized she needed to wear her bracelet every night, not just when she is here alone. Fortunately, she didn't break anything or have to be hospitalized, but she was very bruised and needed a lot of care for several weeks.
- Hearing issues. Mother has some hearing loss, but she is adamant about not getting a hearing aid. They are expensive and fragile. She has a friend whose dog swallowed a very expensive hearing aid right before a trip, causing all sorts of turmoil. I understand why Mom doesn't want a hearing aid. I just am still figuring out the right level of loudness to use when speaking to her.
- Soft Foods. As Mother's teeth have deteriorated, it has been suggested she get dentures, which she refuses -- and I don't blame her. Expensive and a pain to keep clean, she would rather get by with her remaining teeth. (Her teeth just fall out occasionally, but we laugh about it.) I have just had to adjust my cooking a bit. Something chewy like a steak is just not edible for her. For vegetables, I generally boil them until tender, then add seasonings and puree. I boiled a head of cauliflower the other night until it was soft, then used a hand blender to puree it, and added cheese, garlic salt, onion powder. For meats, low and slow is the rule. Any beef or pork roast is cooked in the oven at a low temp for hours, or in the crock pot. She hates chicken. Usually once a week I make a meat loaf or swiss steak and she eats it for dinner several nights that week, and I eat chicken on those nights. Or I poach salmon filets in white wine and herbs.
- Medication and doctor visits. I keep up with her pills and fix her "pill box" every week. Every morning I empty her pills into a little dish and she takes them during the day. I also order refills on the prescriptions and get them from the pharmacy. Getting them out of the packages can be a challenge. I don't know what older folks do that don't have a younger caregiver. Mother sees a doctor who specializes in Gerontology, and he is such a blessing to her. He understands the issues unique to older folks, like not being over-medicated, and he takes time to really talk to her and listen to her. I urge anyone over 65 to see a gerontologist.
- Faith is critical. Mother has a strong faith in God and reads her Jesus calling devotional book almost every day. Church is too difficult for her, but she did get to Michael's baptism a few years ago (photo above). It's important for anyone at the end of life to have faith that death is not just the end of everything. We don't believe it is. We believe in heaven, and Mother believes she will one day be reunited with my dad, her parents, etc. Talking about prayer, and faith, and getting to church (if possible) is so important. It's really critical to allay fears and keep a positive attitude.
- Family and friend visits. I cannot emphasize enough how important it is for any older person to have regular visits from family members. Mom cannot get in the car and go visit anyone, so I try to get my brother, cousins, and others to come in as much as possible and visit with her. A senior who is alone and who doesn't have regular social interaction is probably going to have a very poor quality of life. If your senior can get out, great. If not, try to make sure they get visits as much as possible -- with people they love and/or like, obviously. Mom loves a good joke and humor is a key to happiness. We laugh all the time about silly things, like when I say something and she hears something entirely different.
Most important, like all of us, older folks need love and affection. Hugs are important. I never say goodnight to Mom without saying "I love you." If she dies in her sleep, I want those to be the last words she heard from me. The last time I saw my dad, the last words I said to him were "I love you." After he died I was so glad those were the last words he heard from me. SO IMPORTANT.
Mom got her first pair of prescription glasses a few weeks ago, at age 83! She says it's much easier to see the TV and computer now.
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